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Voices of the SWN Community

SWN patients who have taken their diagnosis public — documenting their journeys, naming the realities of living with a brain tumor, and making it possible for the next undiagnosed SWN to find their name.

Attribution   Posts and articles below are publicly published by the advocates themselves. We link to the original source and do not reproduce content without permission. To be added as a featured advocate or to request removal, contact info@theorderoftheswns.org.

Advocates

Patients who are publicly sharing their SWN journeys and actively using their platforms to reach others who may be undiagnosed.

Lauren Papadopoulos GreenSWNSurrey, U.K.

Lauren was 18 when her right arm became paralyzed on her birthday. An MRI revealed a schwannoma. She recovered from surgery — and then, a decade later, the tumor recurred. Now 31, she documents her experience openly on TikTok and Instagram, naming the realities of living with a brain tumor and reaching people who are still searching for answers.

TikTok · @laurenpapagreen →Instagram · @itslaurenpapagreen →

Recent Posts & Articles

When advocates post publicly about SWN — a TikTok, an interview, an article — it goes here. Every link is one more way a lost SWN can find their name.

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